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Intestinal Lymphangiectasia
Intestinal lymphangiectasia is a rare small intestine disorder where dilated lymph vessels leak essential nutrients, causing swelling, low protein levels, and malabsorption. Dr. Scott in Houston provides expert, personalized diagnosis and compassionate treatment plans to restore your health and well-being.
Dr. Scott Liu, MD, is a board-certified gastroenterologist with over six years of experience and a background in military medicine. He earned his medical degree from the University of Maryland, Baltimore, completed his Internal Medicine residency at Naval Medical Center Portsmouth, and finished his Gastroenterology fellowship through the National Capital Consortium. Dr. Liu provides comprehensive care for a broad range of digestive conditions, including abdominal pain, acid reflux, liver disease, chronic diarrhea, and colon cancer screening. He is a member of the American College of Gastroenterology and is known for his disciplined, patient-focused approach and clear communication.
What Is Intestinal Lymphangiectasia?
Intestinal lymphangiectasia is a rare disorder of the small intestine in which lymphatic vessels become dilated and “leaky.”
Because these vessels normally carry fats, proteins and fluids from the gut into the bloodstream, leakage leads to nutrient loss, low protein levels and swelling over time.
Common Causes and Risk Factors
Primary (congenital) maldevelopment of the lymphatic vessels
Secondary obstruction or damage from infections (e.g., tuberculosis)
Lymphoma or inflammatory bowel disease such as Crohn's disease
Heart failure causing elevated lymphatic pressure
Prior abdominal surgery or radiation therapy
Inherited genetic conditions affecting lymph vessel structure or function
Signs and Symptoms
Chronic diarrhea or bulky, fatty (“greasy”) stools
Unintended weight loss despite normal intake
Swelling (edema) in the legs, ankles or around the eyes
Persistent fatigue or generalized weakness
Dizziness, low blood pressure or lightheadedness from protein loss
How Dr. Scott Diagnoses Intestinal Lymphangiectasia?
Dr. Scott uses a step-by-step approach:
Medical History and Exam
He reviews your history of diarrhea, edema, unexplained weight loss, and any family or personal risk factors.
Blood Tests
We measure serum protein, albumin, immunoglobulins, and lymphocyte counts to identify protein loss.
Stool Analysis
Fecal fat testing quantifies fat malabsorption and lymph leakage into the gut.
Endoscopy and Biopsy
An upper endoscopy inspects the small bowel lining; targeted biopsies look for dilated lymphatic vessels.
Imaging Studies
MR Enterography maps intestinal and lymphatic anatomy.
Lymphangiography pinpoints sites of lymphatic leakage.
Advanced Testing (if needed)
Capsule endoscopy and genetic testing help when the diagnosis is unclear or to rule out other causes.
Treatment
Our Team offers a full range of care for intestinal lymphangiectasia.
1. Lifestyle and Diet Changes
Eat low-fat meals enriched with medium-chain triglycerides (MCTs)
Consume small, high-protein meals spaced throughout the day
Supplement with vitamins A, D, E, K and other key nutrients
2. Medications
Diuretics to reduce swelling and fluid buildup
Albumin infusions to restore and maintain healthy protein levels
Octreotide injections to slow lymph leakage
3. Minimally Invasive or Surgical Options
Lymphatic embolization to seal specific leaking vessels
Surgical resection for localized intestinal lesions
Dr. Scott Liu, MD, is a board-certified gastroenterologist with over six years of experience and a background in military medicine. He earned his medical degree from the University of Maryland, Baltimore, completed his Internal Medicine residency at Naval Medical Center Portsmouth, and finished his Gastroenterology fellowship through the National Capital Consortium. Dr. Liu provides comprehensive care for a broad range of digestive conditions, including abdominal pain, acid reflux, liver disease, chronic diarrhea, and colon cancer screening. He is a member of the American College of Gastroenterology and is known for his disciplined, patient-focused approach and clear communication.
Frequently Asked Questions
What causes intestinal lymphangiectasia?
It can be caused by infections like tuberculosis, lymphoma, heart failure, prior surgery or radiation, and genetic issues affecting the lymphatic vessels.
Can adults get this condition?
Yes. While it's more commonly diagnosed in children, intestinal lymphangiectasia can develop in adults too.
What is the life expectancy?
With proper care-including diet, supplements, and medications-most people live well and maintain a good quality of life.
What is the ICD-10 code?
The ICD-10 code for intestinal lymphangiectasia is K90.81.
How fast will I feel better?
Many patients notice improvements in symptoms like swelling and fatigue within a few weeks of starting treatment.
Will I need surgery?
Most people manage this condition with diet changes and medications. Surgery is rare and reserved for localized lymphatic leaks.
